IEPs IEPs

It was good, it was bad, it was frustrating, and it was mostly good.

Last week was KK's IEP meeting. It lasted a lot longer than I think any of us had anticipated and it went better than I'd hoped for bits.

We have a setup where we take the boy to the university for their language school. He gets his speech therapy there, but other services have to come from the school district. Last year we requested that he get evaluated for OT. We got those results this year. Yeah, that's more than a bit out of compliance for a response. And I'm still a bit pissed about it.

But the results say that he does qualify for OT. We knew this. He can't even dress himself for Pete's sake. Anyway, she also said he's very ready to learn and will incorporate what she demonstrates back into the classroom. Yay. This is a really good sign. Also, she's going to take him out for one on one sessions to avoid distractions in the classroom. I think that's brilliant. She also said he's got the skill level of a 24 month old according to her tests. FTR, he's almost four. ;-/

They actually read his autism evaluation and suggestions for the first time. We gave them a copy much earlier. Did I mention my frustration with the school district? Yeah. Anyway, they read the recommendations and asked about getting an autism specialist on his team. Ya think? His preschool director also wants to involve the university to see if he qualifies for any studies (since those usually involve funding and more therapy than we would otherwise receive.) I'm all over that plan.

We went over his strengths - letters and numbers, increasing receptive skills, better focus, etc. Yay. And then the bad part, his weaknesses. I had to admit that his functional communication skills really hadn't improved. He says the words he says more clearly, but he's still not saying that many words to do anything other than label objects. He does have his moments, so here's to hoping that those moments increase.

His preschool director said she'd left an AAC device in the class and given him some opportunity to play with it to see if it would help at all. He used it to ask for a snack, which is good, but then when other kids started playing with it, he started hitting the "no" button repeatedly. Even better.

The end goal is still going to be spoken communication, but if an AAC device bridges the gap, I'm all over that.

I requested cognitive testing if it were possible, but we decided that maybe waiting another year would be better to really get a good picture. I wanted a baseline, but I didn't want a test that relied on his communication ability to see what's going on in his head, and I know that's going to be hard to find.

They also initially had him listed as being dairy free for the treatment of autism. We corrected them that he was dairy free for the treatment of foul smelling farts from hell, but if it improved his behavior, yay for us. They all seemed to think he was much more focused since we'd eliminated dairy from his diet, but it's hard to tell if that's just halo effect. The stinky farts are not halo effect, so yay to be rid of those.

Apple, yes, plum, orange

The latest echololia. It took me a bit to realize he was saying "plum" and not "mom." So we'd have these conversations:

K: Apple
Me: You want an apple?
K: Yes. Mom.
Me: Good talking! I'll go get you an apple
K: Orange.

Heh, It took me a bit to realize that they were just a list of words, too. He's got a hand motion that goes with it, like he's packing things. It goes with his absolute love of the letter P and of the Fun With Phonics DVD, from what I can tell. About halfway through, when they pack for the picnic. You'll see what I mean.

And also related to his love of the letter P, he spontaneously picked up Hop on Pop and started reading the words hop and pop. He won't let me open the book. He insists on carrying the book over and trying to prop it up on a computer monitor, where it falls over, but he sounds out the words on it.

Two words with purpose

Woo! The boy caught a conversation we were having with the girl and understood it. We wanted her to go take a bath. He said her name and then bath. Twice. He clearly understood what she was doing, and he managed to articulate the concept. Yay for communication!

Measles Over Autism

“Most parents I know will take measles over autism,” said J. B. Handley, co-founder of Generation Rescue, a parent-led organization that contends that autism is a treatable condition caused by vaccines.

- From a NYT article showing a rise in Measles cases, including at least two deaths.

Um, no. Not me. Even assuming for a moment that the MMR vaccine causes autism. It doesn't. There's no credible evidence at all that it does, and the rate of diagnosis has increased even as the rate of vaccination has decreased. But even assuming it were a possibility - I'd rather have a live child with a disability than a dead child I could have saved.

Just like some of the so called "treatments" out there. I'd rather have a live child with a disability than a dead child with a cure.

Harry Potter Fans Start Early

Ok, so we've got a massive wall of bookshelves that are piled with books (and other crap that gets tossed up out of kid reach, but that's beside the point). They go from floor to ceiling and are a toddler temptation.

We put up a massively long toddler gate to block them off, but the gate didn't completely fit well, so there was a loop in the gate on one side that K would tend to fill with any object he could toss over the edge. It was a pain to clean, and you never knew what garbage you'd find when you did.

My husband decided that K was old enough not to take the books off the shelf all the time (ha!) and took the gate off. The living room is cleaner without the crap pile, but K, of course, loves taking the books off the shelf.

Apparently he's a big Harry Potter fan, because the other day he just took the Harry Potter books down. He removed the dust cover on each one and then lined them up on the couch.

If he does it again, I'm taking a picture.